A few of you have tentatively offered advice. Please know that all advice is solicited! We will not be offended in the least by what you might fear is "interference." And I've got one question in particular I'd like your advice on (in fact, you can vote in the above poll--that's not to say that I'll go with the most popular option--but I am curious to know if there is an overwhelming majority for one answer or the other):
Should I stay in the room with Sam when they're putting in the nasal cannula (it doesn't hurt, it's just a strange feeling), or should I leave? Initially I thought I should stay, but after talking with a respiration therapist I'm not so sure. I called her the other day and asked if there was anything that could make the nasal cannula easier for a 3-year-old. She said "No," and went on to explain that I would need to decide whether or not I wanted to be in the room during that moment.
Originally I assumed I would stay, but now I'm not so sure. She said it can be confusing for a kid to see his parent standing there not coming to his rescue when he's crying. She said sometimes it's easier for the parent to be out of the room and come in immediately afterwards in order to comfort the child without looking like the parent was in cahoots with the doctors.
I think I'm still leaning towards staying--mostly because Sam is a Mama's Boy and I imagine he'll be even more panic-stricken if I leave. But I thought I would post the question to you readers in case you have any advice. So, any advice?
I also wanted to let you know that we discovered the sleep medicine Sam had recently started was not agreeing well with him. I've dubbed it Sam's "crazy medicine". The few times he took it he was wide-eyed, swatting at things and mumbling three hours after ingestion. We stopped the medicine two nights ago and are back to "normal" (normal meaning multiple wake ups, occasional night terrors, but no craziness).
We've got seven hours before we leave for Riley. This sleep study is taking place at a different Riley hospital--not the one we went to originally. This one is a bit closer to our home and will look different (different room and staff) from the first one we went to. I thought this would be helpful for both mother and son. My sister is watching Clara so John can come with us and drive us home in the morning (please, Lord, let it be the morning and not the middle of the night again). I hired a babysitter this morning so I could sleep in until 10 am in preparation of being awake for most of the study (someone needs to keep vigil to keep him from thrashing in his sleep and pulling out wires).
Sam has been hinting that a bald eagle would be nice for tonight's hospital stay. Little does he know I purchased one last week when I remembered him laughing at himself in the mirror with all the wires while announcing, "I look like a bald eagle!" He didn't, by the way, but whatever makes him happy.
We've had enough bad nights at home in order to have the resolve that we will do whatever we need to do to make this study work. One bad night at the hospital is worth the hope of a multitude of good nights at home for both our sake and Sam's sake.
Please pray for our little boy this evening.